XLH UK supports those with X-linked hypophosphataemia and related disorders.
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Amy’s Story: A Personal Journey of Family Planning with XLH
We are pleased to share with you a new patient story in which we hear from Amy, who opens up about the personal choices she made when starting her family. Amy has XLH and, after careful consideration, chose IVF to ensure that her two daughters would not carry the XLH...
Northern Ireland has a successful XLH Family Day
On Saturday 21st June, Northern Ireland had its own XLH Family Day and it was a brilliant success! The event brought together families affected by XLH for a day of connection, support, and community. We've been told the feedback from parents was really positive, and...
Community Day 2025
STOP PRESS! Speakers announced We are delighted to confirm the speakers at the next XLH UK Community Day on Sunday 1st June 2025. There is still time to register for the event here. Keynote Speaker - Professor Kassim Javaid on the new Oxford University research...